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Offline jegher.pheochromocytomasupportboard

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6 12/09/09 13:21:51 01/08/12 02:02:34 12/28/07
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02/08/09
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after a rather healthy life in the end of 2004 I got diagnosed with
malign pheo SDHB.Practicaly no symptoms.Surgery of big(12cm)
tumor left adrenal gland(lost kidney,spleen and tail of pancreas
[still working well])and surgery of tumor in carotis fork,right(3cm)
.In 2005 lymph nod metastasis in the neck.surgery in August.End
of 2005 metastasis in the liver.Surgery February 2006.In spring
new metastasis cloth to vertebra(one in the neck,one above the
hart and two at the level of the kidney).July to November
DATADOC therapy in Basel.A year later all but the one in the
neck disapeared in the sinti.In October the tumor in the neck
started to give me lot's of trouble.I had incredible attacks of pain
und could control it only with lots of medis.Surgery February
2008.In March local radiation therapy.New trouble of a tumor
in the abdomen cloth to the vertebra. Started chemo (VCD) in
July 5 cycles.2009 rather quiet,but chromogramine starts to go
up again.

For more detail the my post from 02-04-2009

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